I imagine my pain to look a little like this guy....
He's actually named "Hungry" and is the face of the new Weight Watcher's campaign but I've decided he's also going to be the new face of my pain. He's naughty, difficult to ignore, and not easily subdued. If that doesn't say "chronic pain," then I don't know what does.For a long time, I've imagined the source of my pain to be a tiny gremlin who uses my nerve fibers as Tarzan ropes and sniggers at my paltry attempts to subdue his shenanigans. For awhile, I pictured this little beast to look something like the gremlin who terrorizes John Lithgow in that famous episode of the Twilight Zone; however, when I tracked down a picture of that thing, I decided it was way too scary to be living inside of my body.
Then I was in the hospital for my stimulator surgery and I saw a Weight Watcher's commercial featuring one very misbehaved "Hungry" monster. He was exactly how I imagined my little pain gremlin to be!
Here he is with some donuts. He looks cute..but don't get too close. He bites.

He also does voodoo and is into various forms of magic...

So now you know how I think of my pain. How do you think of yours?



19 comments:
Jungle Cat paces surreptitiously just beyond the edge of the compound, waiting ever so patiently for an opening to appear. The victim goes about her routine seemingly unaware of the nearby threat. Then it happens – the balance of rest/medication/stimulation is slightly altered. Jungle Cat sees her chance to strike. With tenacious abandon, she latches on, refusing to yield. The battle rages, sometimes for hours, until Jungle Cat reluctantly releases her hold and slinks beyond the barrier to resume her silent vigil. The struggle is over for now, but the threat continues. HOW'S THAT FOR DRAMA?
Ok, I always thought the pain demon was actually the Gremlin creatures from the movie Gremlins.
They are perfect as when you feed them proper amounts of pain meds and SCS stimulation they can for breif
periods of time become warm,fuzzy, creatures. However, we all know what they become when treated in any way they do not like....
Just wanted to say how much I enjoy reading your blog. My mom has suffered from chronic pain for some time(she's in her 60's) and reading about your experiences (good and bad) has helped me feel so better about what I hope her life can be like in the future. Thank you so much for your candid and very humorous take on living with chronic pain!
THANK YOU for creating this site. I've been dying to find practical information about SCS. I'm a 30 year old physical therapist and haven't been able to work for 18 months because of pain...and all the meds...and their side effects...my pain management doc suggested the Medtronic SCS for me to check out at least and I'm so thankful to find other persons' experiences here. Odd how I always think I'm the "only one" who could ever be this young and going through something like this...glad you proved me wrong!
Thanks for the so needed "grins"! I need it & can surely relate. Seems one of my leads was either not connected or was pulled loose in transfering me from the operating table back to the bed and that lead is putting pressure on a nerve that goes to my chest & stomach, not doing anything for my back pain. Duh!!! What a disaster! I go back in for surgery July 1. They will wake me up mid-surgery & try it. If the SCS works it stays, if not it all comes out. I know, probably too many details but maybe helpful for someone. Let's just hope this all works out. I truely enjoy this blog :) thanks,
Limojay
Seernisse: I'm very impressed with your flare for drama. Jungle Cat scares me...and I think she needs to be de-clawed.
How are you doing with your recovery? I noticed that you're only a few weeks out...are you moving around alright? How's the incisional pain? Did you have surgical leads or percutaneous leads implanted?
Wrambler..you are so right! We're either working with Gizmo the Gremlin when the pain is under control or that butt ugly Gremlin when the pain is out of control (me thinks his name was Spike?)....
Anonymous:
Thank you so much for visiting the site and for taking the time to post. I'm so sorry to hear that your mum suffers with chronic pain. :( Is she followed by a pain management center?
PS-I think you're a great daughter for trying to understand what your mum is going through.
Crystal:
Hello there and thanks for visiting! Sounds like these past 18 months have been a royal stinker for you. I'm really sorry for that. Please know that you most definitely are NOT alone...there are a lot of people who visit this site who understand what you're going through (and who are young like you and me).
So are you considering the SCS? Do you have any questions? Let me know if you do!
How are you managing your pain as of now?
Limojay:
Man...how the heck did that lead come unattached?! I feel so bad for you! :( You are a real trooper and I am praying that things work out on July 1st for you. Thank you for keeping me updated (as I am nosy by nature and need details). Also, I appreciate you sharing your story as I think sharing our experiences can only help other patients.
So are they going to open up the same incisions they made before?
Hi Danimal - I'm moving around pretty well (2 weeks post-op today). I had the percutaneous leads for 2 reasons: my pain doc is very successful with the percutaneous leads and I didn't like the idea of another spinal surgery. The soreness of the back incision is pretty minimal, but the battery incision is still pretty achy. It is pretty low on my right "cheek" so I'm very careful about where and how I sit. I have very strict guidelines about BLT's and not raising arms over my head in order to keep those leads in place. The scs is very helpful with most of my chronic pain, but I have one very stubborn area in the back of my right thigh. That's Jungle Cat for sure!
Thanks Danimal! I've sent mom your site too. It's so hard not being able to feel what she is experiencing! My mom is very stubborn and doesn't want to admit she's in pain. She has seen a few physicians with no success. (This is in Canada and the system isn't kind to some people, I think). Yoga has helped (spiritually more than physically I think). Massage helps a little too. Drugs do NOT help and only seem to make her more upset and disconnected. I am researching SCS as much as I can to help her have an informed discussion with her physician. (I live thousands of miles away unfortunately). She's hesitant to have surgery. If you don't mind me asking, how did you decide to go down this path? Oh - my email is ryannd73@yahoo.com (I couldn't figure out how to post that originally) as I don't have a google acct. Thanks and keep up the wonderful posts! Ryann :)
I think my pain demond is a Cave Demon. Drilling into my nerves and setting off dinamite. Now he is stunned with my SCS and he can't do his dirty work.
Still, once in a while he will blast me with pain, and I have to set my SCS on full. I am lucky though, I get really good relief almost all of the time.
Good Luck Limojay! My SCS has worked so well for me, I hope it works for you too.
Does anyone know what material the Medtronic scs is made of? I was allergic to the rods used in my fusion, and really don't want to go down that road again! Thanks
Hi cmstevens: welcome! I'm not sure what material the SCS is made of but let me do a little researching and I'll try to find out for you. I can email my Medtronic Rep and ask, if all else fails! There are several components to the system...the battery unit, connecting cable, the paddle (if you choose the paddle) and the leads themselves so there are a bunch of different materials. I'll look into it though!
At what level are you fused? Or did they have to take the rods out because of the reaction? I'm so sorry to hear that happened with you. ;(
Danimal, Just keeping you in the "know". I underwent 4 hours of very in depth testing at the hospital today. Wednesdays surgery looks to be a real big deal. Lots of docs & reps will be involved. That's fine with me, the more the better, right? And they will be going through the same incision area. I will keep you posted. Hope you're having a fantastic day.
Limojay
Hi again to everyone. I should probably clarify that Crystal and I are one and the same (I have never blogged before and have no clue what I'm doing). I was fused from L4-S1 and I was back to work full time in 12 weeks, feeling really good. About six months post-op I overgrew the bone compound that they implant(aka the surgeon put too much in) and it was at my L5 nerve root. They watched it (grow)for a while and finally went in to remove it. They had to take the rods out in order to get the bony growth out and thats how I found out I was allergic to them...my back pain was GONE without them! With them I was a more accurate weatherwoman than any local guru! Any change in pressure would pretty much bring me to my knees, and then once the front rolls thru, voila! all better. So I see pain mgt. doc and a neurologist pretty regularly...its been a non-stop medicine buffet, none of which has worked for one reason or another. So, yes, I am considering the SCS seriously; I feel like I'm running out of options so any input would be greatly appreciated!
Looks like this fuzzy animal needs addiction treatment for sweet things.
Glad I found you Danimal. I've had 2 back surgeries - both fusion of L5-S1. The first was with cadaver bones; the second was with rods and screws. Tons of scar tissue later and I'm still in constant pain. Meds seem to work OK, but I've been on opiates now for 3 years and have had to increase them on a regular basis. My pain Dr. mentioned the SCS and when I found your blog, I have to say I was horrified by the procedure. It's like having back surgery and abdomen surgery all over again. OUCH!!! My prob is I have to sit at a computer all day and it's becomming more and more difficult. Many days I have to leave work early, or my preference is to come in later. Fortunately my place of employment is very flexible. My pain: like razor blades in my lower back playing tag all day long. I don't think I'm going to do the SCS, but I will continue to follow your blog. Thank you!
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